It has been 18 months since we first learned of the new autism and ADHD pilot scheme introduced by the Humber and North Yorkshire Integrated Care Board (ICB). We have fought it through legal letters and the media, we have tried to work with the ICB to engage with community concerns, we have requested key […]
Enough is Enough: September 2024 Summary Read More »
We’ve been busy behind the scenes here at the YDRF ND subgroup but have had numerous bouts of burnout and exhaustion since our last blog post. There has been only two of us for some time, though we have recently been joined by a new third member which has really helped. If you would be
April 2024 Update on Autism and ADHD Assessment Pathway Read More »
A lot of people have been in touch with us this week about an email they have received from the Humber and North Yorkshire Integrated Care Board (ICB). Thank you to everyone who contacted us and alerted us to this. The Email Your consent to remain on Autism/ADHD waiting list We are emailing you as
Misleading Email from the ICB Read More »
In January 2021 Ben and I wrote a blog about the difficulties we faced in lockdown. Love, care and common sense got us through the Covid crisis. We were looking forward to better days. We weren’t expecting another crisis so soon! But come 2022, as an older carer, I needed to think about strengthening Ben’s
We have been made aware of some changes associated with the autism and ADHD assessment pilot pathway in York and North Yorkshire. You can read all of the history and our actions on our dedicated webpage. The ICB sent a letter to GPs in the region on 26th September 2023 to highlight some key changes
The Ever-Shifting Sands of the Pilot Scheme Read More »
YDRF has been informed that a decision has been made for the autism and ADHD assessment “3 month pilot” to be extended for 9 more months. We believe there might also be some changes to the eligibility criteria but have no details about this. The Do It Profiler online screening tool will continue to be
Pilot extended for 9 months Read More »
As the pilot restricting Autism and ADHD assessments in York and North Yorkshire is due to end on Tuesday 27th June, we had hoped to write a blog this week to explain ICB’s plan for the future. Despite several requests for clarity, and assurances earlier this week of an ‘update’, the ICB have still not
by YDRF member Carla Morris I’ve always felt different, but I didn’t notice how different until secondary school. I loved to learn and devoted a huge amount of time and effort to the things I found interesting. But what I contributed in passion and enthusiasm seemed to be cancelled out by a complete lack of
ADHD Diagnosis is a Right, not a Luxury Read More »
NHS England published their national framework and operational guidance for autism assessment services on 5th April 2023. David McAsey has been in touch to share his initial thoughts on the guidance as it is highly relevant to the current pilot restricting autism and ADHD diagnoses in York and North Yorkshire. These are my personal initial
Guest Blog: Reflections on NHS England Guidance for Autism Read More »
Keep up with developments on our updates page here Following our blog post on the 26th March (opens in new tab), many of you have communicated with the York and North Yorkshire Health and Care Partnerships to raise your concerns about the decision to change the eligibility criteria for assessment of autism and ADHD. We
Autism and ADHD Assessments Update – Commissioner Response Read More »
