A lot of people have been in touch with us this week about an email they have received from the Humber and North Yorkshire Integrated Care Board (ICB). Thank you to everyone who contacted us and alerted us to this. The Email Your consent to remain on Autism/ADHD waiting list We are emailing you as …
We have been made aware of some changes associated with the autism and ADHD assessment pilot pathway in York and North Yorkshire. You can read all of the history and our actions on our dedicated webpage. The ICB sent a letter to GPs in the region on 26th September 2023 to highlight some key changes …
The Connecting Our City project has caused harm to both its staff and the wider community it has engaged over the past two years. This letter seeks to raise awareness of that harm.
Brace yourselves, this is a long one. In response to one of the Freedom of Information requests, the Humber and North Yorkshire ICB have finally given us some information. We break down the headlines below, but if you’d like to read the documents in full, they are available on the What Do They Know website. …
YDRF has been informed that a decision has been made for the autism and ADHD assessment “3 month pilot” to be extended for 9 more months. We believe there might also be some changes to the eligibility criteria but have no details about this. The Do It Profiler online screening tool will continue to be …
As the pilot restricting Autism and ADHD assessments in York and North Yorkshire is due to end on Tuesday 27th June, we had hoped to write a blog this week to explain ICB’s plan for the future. Despite several requests for clarity, and assurances earlier this week of an ‘update’, the ICB have still not …
by YDRF member Carla Morris I’ve always felt different, but I didn’t notice how different until secondary school. I loved to learn and devoted a huge amount of time and effort to the things I found interesting. But what I contributed in passion and enthusiasm seemed to be cancelled out by a complete lack of …
Keep up with developments on our updates page here Following our blog post on the 26th March (opens in new tab), many of you have communicated with the York and North Yorkshire Health and Care Partnerships to raise your concerns about the decision to change the eligibility criteria for assessment of autism and ADHD. We …
Autism and ADHD Assessments Update – Commissioner Response Read More »
North Yorkshire and York Health and Care Partnership* are removing access to autism and ADHD assessment and diagnosis for adults in North Yorkshire and York in new pilot *Apologies to TEWV NHS who were previously named as having made this decision. YDRF includes autism, ADHD and other neurodivergence in our definition of disability. The social …
Hazel writes about experiencing feelings of ‘not being disabled enough’ and the effect this has on disability identity. When growing up I essentially learnt that “disabled” only really meant physical things, in fact mainly visible ones. Disability was discussed as something to pity, as something that you could see, something that was obvious and could …
‘Am I Disabled Enough?’ Imposter Syndrome and Invisible Disability Read More »
